I wanted to update this morning because I know that some of you are checking up on us to see about Maisy's surgery. The past few days have been CRAZY.
On Monday, Maisy was transferred to PSL's Rocky Mountain Hospital for Children. They took her into the new hospital and the cardiologist and pediatric intensivist looked at her. They said that she looked great and sucked down 65 cc's from her bottle. They also said that she didn't look like a baby in heart failure. The next day they did an echo-cardiogram (ultrasound of the heart).
The cardiologist sat down and talked to me about some reasons that he was considering not going through with the surgery. He still has hope that the VSD (the hole in her heart) will close on its own (although it has the characteristics of a moderate rather than a small VSD). This was about 11am and the cardiologist said he would consult with his colleagues and get back to me around 2pm.
I stayed at the hospital until 4pm and still no word, so I asked the nurse to let me know if they decided anything. Long story short, we didn't get word until after noon yesterday that they are not doing surgery today. Basically, they feel that surgery will probably still be necessary, but Maisy is doing well enough that they want to hold off and let her get bigger. Maisy's heart anatomy and size would make the surgery a little more difficult to do right now. The cardiologist (the partner of the one I mentioned before) said that he hopes Maisy will prove them wrong about surgery and just take off growing and get well on her own. They haven't determined a new surgery date, and I think it will all depend on how Maisy is doing.
In the meantime, they are hoping to send Maisy home in "a couple of days". They think that she can just grow at home until it is time for surgery. Right now they are trying to figure out exactly what she needs to eat in order to grow better and are trying to get her to take more orally, but even if they need to send her home with a feeding tube, they will. We will still be visiting the hospital but Maisy is on the pediatrics floor where they allow children to visit. She also has her own room with a tv and its own bathroom. I'm taking the kids today to have some bonding time with their sister.
We feel really blessed to be under the care of such great doctors and are excited to get Maisy home. Today she is 5 weeks old. Gracie said this morning,"I wish with all my heart to have Maisy home". Hopefully the plan won't change this time. I used to think I liked drama, but I am really starting to miss being boring.
10 comments:
Such good news! Can't wait to read the blog entry that says she is home. You are amazing!
This is crazy drama. She is changing a lot already! Here's to hoping they move along quicker with the decision processes and you all can find a little stability while she fattens up and spends time with her family.
Such good news, we were wondering all morning how things were going! You're so great to keep us all up to date on everything. I hope she can be home for Christmas!
Thank you for the update - wonderful news! Here's to hoping she gets to come home in a couple days!
Thanks for the update, Maggie. I hope she can grow well on her own! Maybe you will have her home for Christmas!
What great news....I bet it will be so wonderful to have her home. SOunds like little Gracie is excited. She sounds like a strong determined little baby.
Maggie! My heart goes out to you and your family! What a trial and a blessing for you. She is looking good and I'm sure she'll continue to grow. Let me know if there is anything I can do from here.
Great news! I too hope she'll be home soon.
Love you. Glad Maisy is doing pretty well.
What...you don't like ambulance rides and feeding tubes and scary surgery talks? I agree with you--it would be much better (and more boring) to be home with your sweet baby. Hope she makes it there soon!
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